MAY 11, 2017 BY KATHLEEN M. MCTIGUE

General Update

The passing of the Equinox has brought change to PaTH and PCORnet. Perhaps the biggest news is that a non-for-profit organization, the People-Centered Research Foundation (PCRF), has been incorporated...

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MAY 11, 2017 BY MOLLY SKUBAK

Study Spotlight: PaTH to Health: Diabetes Study

Type 2 diabetes affects over 29 million people in the U.S. and carries a number of serious risks including heart disease and blindness. Such complications are preventable through proper medication and weight loss, but almost half of all people with diabetes struggle to control it.

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MAY 11, 2017 BY MOLLY SKUBAK

Happenings: Focus on PaTH Patient Perspectives in the PCORnet Bariatric Study

The PCORnet Bariatric Study (PBS) will track the benefits and risks of three common bariatric procedures to help patients and care providers make more informed decisions about bariatric surgery.

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MAY 11, 2017 BY MOLLY SKUBAK

What We’re Learning: Changes in Preventive Health Care Services After Bariatric Surgery

One of the first research questions that the PaTH Healthy Lifestyles and Weight researchers are tackling is focused on obesity. The analysis is being led by Michelle Lent, Ph.D., of Geisinger Health System, who recently spoke with us about the paper, and Sharon Herring, M.D., from Temple University.

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MAY 11, 2017 BY MOLLY SKUBAK

Patient Partner News: Julie Tice

Julie Tice had struggled with her weight for most of her adult life and was eventually diagnosed with type 2 diabetes. When she realized she could become dependent on insulin, Julie knew it was time for a change.

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MAY 11, 2017 BY MOLLY SKUBAK

Cohort Update: Healthy Lifestyles and Weight

Maintaining a healthy lifestyle and weight can provide a wide range of health benefits, while having obesity or overweight puts individuals at increased risk for serious conditions such as heart disease, stroke, type 2 diabetes, and certain types of cancer.

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MAY 11, 2017 BY MOLLY SKUBAK

Meet PaTH: Treva Alston

As a PaTH Patient Partner, Treva Alston participates on the Steering Committee, Executive Committee, Protocol Review Committee, and Healthy Lifestyles and Weight Cohort. She says her experience has been “rewarding and enlightening,”

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MAY 11, 2017 BY MOLLY SKUBAK

Clinical Champion News: Dr. Anita P. Courcoulas

As care providers who work directly with patients, Clinical Champions offer PaTH a unique and important perspective. For instance, they’re able to give researchers input on whether or not a proposed study would align with their clinic’s workflow and whether a study’s processes are likely to be satisfactory to care providers and patients.

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MAY 11, 2017 BY MOLLY SKUBAK

Data Paths: An Update from the PaTH Informatics Team

Researchers often refer to patients’ electronic medical record (EMR) to better understand their risk for developing disease and the efficiency of different treatments.

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MAY 11, 2017 BY MOLLY SKUBAK

Researcher Toolbox: Recruitment Strategies

PaTH project managers and research assistants use a variety of methods to recruit study participants, such as reaching out to potential participants through traditional means like email, phone calls, direct mailings, and in-person conversations.

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JANUARY 20, 2017 BY KATHLEEN M. MCTIGUE

General Update

Greetings! The PaTH team is welcoming 2017 with a flurry of good news – all six of our network’s DataMarts are fully operational, having passed the second round of PCORnet “Data Characterization”

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JANUARY 20, 2017 BY MOLLY SKUBAK

Study Spotlight: TARGET Trial

Many people are all too familiar with low back pain. It’s a common problem among adults that can impact a person’s ability to participate in daily activities, including their job.

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JANUARY 20, 2017 BY MOLLY SKUBAK

Happenings: Stakeholder Meeting at Temple

On September 14, PaTH researchers, clinical champions, health system leaders, informatics experts, and patient partners gathered at Temple University in Philadelphia for a Stakeholder Engagement meeting.

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JANUARY 20, 2017 BY MOLLY SKUBAK

What We're Learning: PCORnet Bariatric Study

Obesity is a significant problem in the United States, affecting more than one third of adults and about 12.7 million children and adolescents. It is connected to a myriad of other health issues.

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JANUARY 20, 2017 BY MOLLY SKUBAK

Patient Partner News: Jim Carns Shares His Story

In this month’s Patient Partner News, Jim Carns shares his personal experiences leading up to and post single lung transplant in September of 2013.

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JANUARY 20, 2017 BY MOLLY SKUBAK

Cohort Update: Atrial Fibrillation

Between 2.7 and 6.1 million Americans have atrial fibrillation, the most common heart rhythm abnormality. Atrial fibrillation, or AF, occurs when the normal, organized electrical signals that typically control heart contractions are replaced with chaotic waves of electrical activity in the top heart chambers.

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JANUARY 20, 2017 BY MOLLY SKUBAK

Meet PaTH: Heather Coulter

As a Community Engagement Specialist for the PaTH Network, Heather Coulter, M. Ed., University of Utah, facilitates collaborations between researchers and community members to help researchers best understand how to work with patients.

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JANUARY 20, 2017 BY MOLLY SKUBAK

Clinical Champion News: Dr. Henry Parkman

An important feature of the PaTH Network is Clinical Champions. These clinicians work directly with patients and act as representatives of their medical specialty.

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JANUARY 20, 2017 BY MOLLY SKUBAK

Data Paths: An Update from the PaTH Informatics Team

The Geisinger Health System joined PaTH as a new site just over a year ago, bringing a wealth of experience with using “real-world” health data in research to improve health care and health outcomes.

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JANUARY 20, 2017 BY MOLLY SKUBAK

Researcher Toolbox: PaTH’s FRT Group Can Help Researchers Obtain Funding

Applying for a research grant can be a complicated process, especially when data from multiple health systems are involved, so PaTH created the Future Research Topics (FRT) Work Group.

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AUGUST 19, 2016 BY KATHLEEN M. MCTIGUE

Welcome

Greetings from the PaTH Clinical Data Research Network (CDRN)! In the PaTH Finder, our new quarterly e-newsletter, we hope to share news across the many clinical researchers, patient partners, other stakeholders, informatics experts and clinicians who make up the PaTH community.

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AUGUST 19, 2016 BY MOLLY SKUBAK

Study Spotlight: ADAPTABLE

In 2014, heart disease led to 614,348 deaths, making it the leading cause of death in the United States once again. Today, an estimated 15.4 million Americans continue to live with heart disease.

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AUGUST 19, 2016 BY MOLLY SKUBAK

What We’re Learning: PaTH Cohorts Prepare to Analyze Data

Researchers will soon analyze data from surveys sent to patient participants in each PaTH cohort. Currently, PaTH focuses on three main cohorts: Idiopathic Pulmonary Fibrosis (IPF), Atrial Fibrillation (AF), and Healthy Lifestyles and Weight (HLW)...

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AUGUST 19, 2016 BY MOLLY SKUBAK

Happenings: Understanding Health System Leaders’ Priorities

Last November, researchers, health system and health plan leaders, physicians, and patients from PaTH’s six health care systems met in Pittsburgh to identify research areas the network could pursue.

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AUGUST 19, 2016 BY MOLLY SKUBAK

Meet PaTH: Dr. H. Lester Kirchner

H. Lester Kirchner, PhD, knew since high school that he wanted to be a biostatistician, so it’s hardly a surprise that today he’s the director of the Biostatistics Core at Geisinger Health System, leads PaTH’s data and informatics at the Geisinger site, and acts as the Geisinger PaTH Principal Investigator.

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AUGUST 19, 2016 BY MOLLY SKUBAK

Patient Partner News: Sharing Your Story

“All people are storytellers,” says David Brauer, a master storyteller and member of the Scottish Storytellers Guild, The Society for Storytellers (UK), Three Rivers Storytellers, and the West Virginia Storytelling Society...

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AUGUST 19, 2016 BY MOLLY SKUBAK

Data Paths: An Update from the PaTH Informatics Team

With 10.8 million patients across six different health care systems, a unique challenge the PaTH Network faces is recording data consistently across its sites. For example, Pitt researchers may note a patient’s blood cholesterol levels as milligrams of cholesterol per deciliter of blood (abbreviated as mg/dL)...

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AUGUST 19, 2016 BY MOLLY SKUBAK

Cohort Update: Idiopathic Pulmonary Fibrosis

Idiopathic Pulmonary Fibrosis, often known as IPF, is a rare and often severe lung condition that affects 14 to 28 people per 100,000 individuals in the U.S. population. PaTH’s IPF team meets weekly and includes researchers ...

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AUGUST 19, 2016 BY MOLLY SKUBAK

Clinical Champion News: Dr. Frederick Han

When the University of Utah joined PaTH in 2015, the network gained not only another terrific partner institution, and maintained leadership by Dr. Rachel Hess ...

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AUGUST 19, 2016 BY MOLLY SKUBAK

Researcher Toolbox: The PaTH Network Protocol Review Committee

One of the most important goals of the PaTH Network is ensuring all PaTH-affiliated studies are informed by patient perspectives. The PaTH Network Protocol Review Committee (PNPRC) is a key innovation the network has developed to help reach this goal.

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