OCTOBER 30, 2019 BY KENDAL BACHARACH

Happenings: September Face-to-Face PaTH Steering Committee Meeting

In mid-September, all seven PaTH sites gathered at the University of Pittsburgh for a two-day Steering Committee Meeting. The principal investigators, project managers, informatics teams, as well as PaTH patient partner, Treva Alston, were on hand to discuss the exciting happenings within the network....

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OCTOBER 30, 2019

Meet PaTH: Alice Livshits

Get to know Temple University’s informatics lead, Alice Livshits .

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AUGUST 22, 2019 BY CAROLYN BRAMANTE, MD, MPH

Cohort Update: Healthy Lifestyle and Heath Care Research PaTH Cohort

The PaTH Network Primary Care cohort is an exciting way to gain insight into health behaviors among primary care patients. This cohort of patients was given a series of surveys...

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AUGUST 22, 2019 BY SOLEDAD FERNANDEZ, PHD

Happenings: Overview of The Ohio State University

The Ohio State University Wexner Medical Center, ranked #3 among 104 academic medical centers, is one of America’s largest and most comprehensive universities and is home to more than 20 research centers and institutes and 25 core research laboratories...

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JULY 24, 2019 BY KENDAL BACHARACH

Study Spotlight: ADAPTABLE

The ADAPTABLE Study set out three years ago to compare the effectiveness of two commonly prescribed doses of aspirin to prevent heart attacks and strokes in those living with heart disease...

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JULY 24, 2019 BY MEGAN HAMM, PHD

Patient Partner News: Piloting and Revising a Survey to Assess Patient Partner Perspectives on PCORnet Queries

During the first six months of 2019, the PaTH Stakeholder Workgroup piloted a survey it had developed to assess patient partner interest in and opinion on the PCORnet research queries that PaTH fulfills...

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JUNE 21, 2019 BY Jennifer Kraschnewski, MD, MPH

Study Update: PaTH To Health: Diabetes

Nearly 40% of adults are obese in the United States, making it our number one health concern. There is a well-established link between obesity and increased morbidity...

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JUNE 21, 2019

Meet PaTH: Nickie Cappella

Get to know the University of Pittsburgh’s informatics lead, Nickie Cappella.

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MAY 10, 2019 BY KATHLEEN M. MCTIGUE

General Update

2019 has brought some exciting changes to PaTH, including the addition of two new sites to the network – the Ohio State University and the University of Michigan...

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MAY 10, 2019

Study Spotlight: Daily24 Study

Overweight and obesity are established risk factors for cardiovascular disease. Successful weight loss strategies have focused on reducing calories and modifying dietary composition...

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MAY 10, 2019

Happenings: PaTH Welcomes the University of Michigan

The PCORnet site at the University of Michigan (U-M) is pleased to become a new member of PaTH. Previously a member of LHSNet, our site is both joining a new network and finding a new home within our own academic institution...

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MAY 10, 2019

What We’re Learning: What is Real World Evidence, summary of presentation by Dr. Mark Weiner, PaTH-Temple

To understand what “Real World Evidence” entails, we must first describe the understanding of real world data. Real world data are data related to patient health status and/or delivery of health care that is routinely collected from various sources....

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MAY 10, 2019

Patient Partner News: Fostering Stakeholder Engagement Using Narratives

The MyPaTH Story Booth project aims to help researchers understand the perspectives of patients and caregivers facing illness or who have difficulty accessing health care...

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MAY 10, 2019

Meet PaTH: Soledad Fernandez

Get to know the Principal Investigator of another new PaTH site—Soledad Fernandez, PhD...

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MAY 10, 2019 BY JONATHAN SILVERSTEIN

Data Paths: An Update from the PaTH Informatics Team

The Common Data Model (CDM) is the structure in which health systems and health plans assemble data from electronic medical records and billing systems for PCORnet...

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MAY 11, 2017 BY KATHLEEN M. MCTIGUE

General Update

The passing of the Equinox has brought change to PaTH and PCORnet. Perhaps the biggest news is that a non-for-profit organization, the People-Centered Research Foundation (PCRF), has been incorporated...

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MAY 11, 2017 BY MOLLY SKUBAK

Study Spotlight: PaTH to Health: Diabetes Study

Type 2 diabetes affects over 29 million people in the U.S. and carries a number of serious risks including heart disease and blindness. Such complications are preventable through proper medication and weight loss, but almost half of all people with diabetes struggle to control it.

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MAY 11, 2017 BY MOLLY SKUBAK

Happenings: Focus on PaTH Patient Perspectives in the PCORnet Bariatric Study

The PCORnet Bariatric Study (PBS) will track the benefits and risks of three common bariatric procedures to help patients and care providers make more informed decisions about bariatric surgery.

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MAY 11, 2017 BY MOLLY SKUBAK

What We’re Learning: Changes in Preventive Health Care Services After Bariatric Surgery

One of the first research questions that the PaTH Healthy Lifestyles and Weight researchers are tackling is focused on obesity. The analysis is being led by Michelle Lent, Ph.D., of Geisinger Health System, who recently spoke with us about the paper, and Sharon Herring, M.D., from Temple University.

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MAY 11, 2017 BY MOLLY SKUBAK

Patient Partner News: Julie Tice

Julie Tice had struggled with her weight for most of her adult life and was eventually diagnosed with type 2 diabetes. When she realized she could become dependent on insulin, Julie knew it was time for a change.

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MAY 11, 2017 BY MOLLY SKUBAK

Cohort Update: Healthy Lifestyles and Weight

Maintaining a healthy lifestyle and weight can provide a wide range of health benefits, while having obesity or overweight puts individuals at increased risk for serious conditions such as heart disease, stroke, type 2 diabetes, and certain types of cancer.

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MAY 11, 2017 BY MOLLY SKUBAK

Meet PaTH: Treva Alston

As a PaTH Patient Partner, Treva Alston participates on the Steering Committee, Executive Committee, Protocol Review Committee, and Healthy Lifestyles and Weight Cohort. She says her experience has been “rewarding and enlightening,”

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MAY 11, 2017 BY MOLLY SKUBAK

Clinical Champion News: Dr. Anita P. Courcoulas

As care providers who work directly with patients, Clinical Champions offer PaTH a unique and important perspective. For instance, they’re able to give researchers input on whether or not a proposed study would align with their clinic’s workflow and whether a study’s processes are likely to be satisfactory to care providers and patients.

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MAY 11, 2017 BY MOLLY SKUBAK

Data Paths: An Update from the PaTH Informatics Team

Researchers often refer to patients’ electronic medical record (EMR) to better understand their risk for developing disease and the efficiency of different treatments.

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MAY 11, 2017 BY MOLLY SKUBAK

Researcher Toolbox: Recruitment Strategies

PaTH project managers and research assistants use a variety of methods to recruit study participants, such as reaching out to potential participants through traditional means like email, phone calls, direct mailings, and in-person conversations.

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JANUARY 20, 2017 BY KATHLEEN M. MCTIGUE

General Update

Greetings! The PaTH team is welcoming 2017 with a flurry of good news – all six of our network’s DataMarts are fully operational, having passed the second round of PCORnet “Data Characterization”

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JANUARY 20, 2017 BY MOLLY SKUBAK

Study Spotlight: TARGET Trial

Many people are all too familiar with low back pain. It’s a common problem among adults that can impact a person’s ability to participate in daily activities, including their job.

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JANUARY 20, 2017 BY MOLLY SKUBAK

Happenings: Stakeholder Meeting at Temple

On September 14, PaTH researchers, clinical champions, health system leaders, informatics experts, and patient partners gathered at Temple University in Philadelphia for a Stakeholder Engagement meeting.

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JANUARY 20, 2017 BY MOLLY SKUBAK

What We're Learning: PCORnet Bariatric Study

Obesity is a significant problem in the United States, affecting more than one third of adults and about 12.7 million children and adolescents. It is connected to a myriad of other health issues.

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JANUARY 20, 2017 BY MOLLY SKUBAK

Patient Partner News: Jim Carns Shares His Story

In this month’s Patient Partner News, Jim Carns shares his personal experiences leading up to and post single lung transplant in September of 2013.

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JANUARY 20, 2017 BY MOLLY SKUBAK

Cohort Update: Atrial Fibrillation

Between 2.7 and 6.1 million Americans have atrial fibrillation, the most common heart rhythm abnormality. Atrial fibrillation, or AF, occurs when the normal, organized electrical signals that typically control heart contractions are replaced with chaotic waves of electrical activity in the top heart chambers.

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JANUARY 20, 2017 BY MOLLY SKUBAK

Meet PaTH: Heather Coulter

As a Community Engagement Specialist for the PaTH Network, Heather Coulter, M. Ed., University of Utah, facilitates collaborations between researchers and community members to help researchers best understand how to work with patients.

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JANUARY 20, 2017 BY MOLLY SKUBAK

Clinical Champion News: Dr. Henry Parkman

An important feature of the PaTH Network is Clinical Champions. These clinicians work directly with patients and act as representatives of their medical specialty.

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JANUARY 20, 2017 BY MOLLY SKUBAK

Data Paths: An Update from the PaTH Informatics Team

The Geisinger Health System joined PaTH as a new site just over a year ago, bringing a wealth of experience with using “real-world” health data in research to improve health care and health outcomes.

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JANUARY 20, 2017 BY MOLLY SKUBAK

Researcher Toolbox: PaTH’s FRT Group Can Help Researchers Obtain Funding

Applying for a research grant can be a complicated process, especially when data from multiple health systems are involved, so PaTH created the Future Research Topics (FRT) Work Group.

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AUGUST 19, 2016 BY KATHLEEN M. MCTIGUE

Welcome

Greetings from the PaTH Clinical Research Network (CDRN)! In the PaTH Finder, our new quarterly e-newsletter, we hope to share news across the many clinical researchers, patient partners, other stakeholders, informatics experts and clinicians who make up the PaTH community.

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AUGUST 19, 2016 BY MOLLY SKUBAK

Study Spotlight: ADAPTABLE

In 2014, heart disease led to 614,348 deaths, making it the leading cause of death in the United States once again. Today, an estimated 15.4 million Americans continue to live with heart disease.

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AUGUST 19, 2016 BY MOLLY SKUBAK

What We’re Learning: PaTH Cohorts Prepare to Analyze Data

Researchers will soon analyze data from surveys sent to patient participants in each PaTH cohort. Currently, PaTH focuses on three main cohorts: Idiopathic Pulmonary Fibrosis (IPF), Atrial Fibrillation (AF), and Healthy Lifestyles and Weight (HLW)...

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AUGUST 19, 2016 BY MOLLY SKUBAK

Happenings: Understanding Health System Leaders’ Priorities

Last November, researchers, health system and health plan leaders, physicians, and patients from PaTH’s six health care systems met in Pittsburgh to identify research areas the network could pursue.

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AUGUST 19, 2016 BY MOLLY SKUBAK

Meet PaTH: Dr. H. Lester Kirchner

H. Lester Kirchner, PhD, knew since high school that he wanted to be a biostatistician, so it’s hardly a surprise that today he’s the director of the Biostatistics Core at Geisinger Health System, leads PaTH’s data and informatics at the Geisinger site, and acts as the Geisinger PaTH Principal Investigator.

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AUGUST 19, 2016 BY MOLLY SKUBAK

Patient Partner News: Sharing Your Story

“All people are storytellers,” says David Brauer, a master storyteller and member of the Scottish Storytellers Guild, The Society for Storytellers (UK), Three Rivers Storytellers, and the West Virginia Storytelling Society...

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AUGUST 19, 2016 BY MOLLY SKUBAK

Data Paths: An Update from the PaTH Informatics Team

With 10.8 million patients across six different health care systems, a unique challenge the PaTH Network faces is recording data consistently across its sites. For example, Pitt researchers may note a patient’s blood cholesterol levels as milligrams of cholesterol per deciliter of blood (abbreviated as mg/dL)...

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AUGUST 19, 2016 BY MOLLY SKUBAK

Cohort Update: Idiopathic Pulmonary Fibrosis

Idiopathic Pulmonary Fibrosis, often known as IPF, is a rare and often severe lung condition that affects 14 to 28 people per 100,000 individuals in the U.S. population. PaTH’s IPF team meets weekly and includes researchers ...

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AUGUST 19, 2016 BY MOLLY SKUBAK

Clinical Champion News: Dr. Frederick Han

When the University of Utah joined PaTH in 2015, the network gained not only another terrific partner institution, and maintained leadership by Dr. Rachel Hess ...

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AUGUST 19, 2016 BY MOLLY SKUBAK

Researcher Toolbox: The PaTH Network Protocol Review Committee

One of the most important goals of the PaTH Network is ensuring all PaTH-affiliated studies are informed by patient perspectives. The PaTH Network Protocol Review Committee (PNPRC) is a key innovation the network has developed to help reach this goal.

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