Publications


Articles

PaTH - Towards a Learning Health System in the Mid-Atlantic Region
Amin, W., Tsui, F., Borromeo, C., Chuang, C. H., Espino, J. U., Ford, D.,…Weiner, M. (2014). PaTH: towards a learning health system in the Mid-Atlantic region. Journal of the American Medical Informatics Association, 21(4), 633-636. https://doi.org/10.1136/amiajnl-2014-002759

Comparative Effectiveness of Bariatric Procedures Among Adolescents: The PCORnet Bariatric Study
Inge, T. H., Yates Coley, R., Bazzano, L. A., Xanthakos, S. A., McTigue, K. M., Arterburn, D.,…Michalsky, M. (2018). Comparative Effectiveness of Bariatric Procedures Among Adolescents: The PCORnet Bariatric Study. Surgery for Obesity and Related Diseases, 14(9), 1374-1386. https://doi.org/10.1016/j.soard.2018.04.002

Description and Patient Perspectives of the UPMC Enhanced Care Program for Super-Utilizers
Hagerman, T. K., McTigue, K. M., & Bryk, J. (2017). Description and Patient Perspectives of the UPMC Enhanced Care Program for Super-Utilizers. SGIM Forum, 40(11).

Development and preliminary evaluation of a patient portal messaging for research recruitment service
Gleason, K., Ford, D., Gumas, D., Woods, B., Appel, L., Murray, P., . . . Dennison Himmelfarb, C. (2018). Development and preliminary evaluation of a patient portal messaging for research recruitment service. Journal of Clinical and Translational Science, 2(1), 53-56.

PROs in the Balance: Ethical Implications of Collecting Patient Reported Outcome Measures in the Electronic Health Record
Crites, J. S., Chuang, C. H., Dimmock, A., Hwang, W., Johannes, B., Paranjape, A., & Wu, A. W. (2016). PROs in the Balance: Ethical Implications of Collecting Patient Reported Outcome Measures in the Electronic Health Record. The American Journal of Bioethics, 16(4), 67-68.

Willingness to Participate in Weight-Related Research Among Patients in PCORnet Clinical Data Research Networks
Heerman, W. J., Bennet, W. L., Kraschnewski, J. L., Nauman, E., Staiano, A. E., & Wallston, K. A. (2018) Willingness to Participate in Weight-Related Research Among Patients in PCORnet Clinical Data Research Networks. BMC Obesity, 5(10). https://doi.org/10.1186/s40608-018-0187-3

Blocks of Interoperability: A Multisite Analysis of Demographic Attributes Available for Patient
Culbertson, A. S., Goel, S., Madden, M. B., Safaeinili, N., Jackson, K. L., Carton, T., Waitman, R.,…Kho, A. (2017). The Building Blocks of Interoperability. A Multisite Analysis of Patient Demographic Attributes Available for Matching. Appl Clin Inform, 8(2), 322-336. https://doi.org/10.4338/ACI-2016-11-RA-0196

PCORnet Bariatric Surgery Collaborative. The National Patient-Centered Clinical Research Network (PCORnet) Bariatric Cohort Study Cohort: Rationale, Methods, and Baseline Characteristics
Toh S, Rasmussen-Torvik LJ, Harmata EE, Pardee R, Saisan R, Malanga E, Sturtevant JL, Horgan CE, Courcoulas AP, Coleman KJ, Williams NA, McTigue KM, Arterburn D, McClay J. PCORnet Bariatric Surgery Collaborative. The National Patient-Centered Clinical Research Network (PCORnet) Bariatric Cohort Study Cohort: Rationale, Methods, and Baseline Characteristics. JMIR. 2017 6(12).

Working to Increase Stability through Exercise (WISE): Study protocol for a pragmatic randomized controlled trial of a coached exercise program to reduce serious fall-related injuries
Sciamanna C, Ballentine NH, Bopp M, Brach J, Chinchilli VM, Ciccolo JT, Conroy MB, Fisher A, Fox EJ, Greenspan SL, Jan De Beur SM, Kearcher K, Kraschnewski J, McTigue KM, McAuley E, Morone N, Paranjape A, Rodriguez-Colon S, Rosenzweig A, Smyth J, Stewart K, Stuckey Heather L. Working to Increase Stability through Exercise (WISE): Study protocol for a pragmatic randomized controlled trial of a coached exercise program to reduce serious fall-related injuries. Contemporary Clinical Trials 74:1-10.

The development of a patient and caregiver narrative archive to support patient-centered research
McTigue KM, Fear D, Hunter K, Karanam S, Uhrig J, Alston T, Dillon S, Faust J, Kim J, LaRosa A, Postol B, Umegbolu S, Hamm M. The development of a patient and caregiver narrative archive to support patient-centered research. 2018. European Journal for Person Centered Healthcare. 6(4):565-570.

The development of a patient and caregiver narrative archive to support patient-centered research
McTigue KM, Fear D, Hunter K, Karanam S, Uhrig J, Alston T, Dillon S, Faust J, Kim J, LaRosa A, Postol B, Umegbolu S, Hamm M. The development of a patient and caregiver narrative archive to support patient-centered research. 2018. European Journal for Person Centered Healthcare. 6(4):565-570.

Combining distributed regression and propensity scores: A doubly privacy-protecting analytic method for multi-center research
Toh S, Wellman, R, Coley RY, Horgan C, Sturtevant J, Moyneur E, Janning C, Pardee R, Coleman KJ, Arterburn D, McTigue K, Anau J, Cook AJ, for the PCORnet Bariatric Study Collaborative. Combining distributed regression and propensity scores: A doubly privacy-protecting analytic method for multi-center research. Clinical Epidemiology. In press.

Comparative Effectiveness of Bariatric Procedures for Weight Loss and Safety: A PCORnet Cohort Study
Arterburn D, Wellman R, Emiliano A, Smith SR, Odegaard AO, Murali S, Williams N, Coleman KJ, Courcoulas A, Coley RY, Anau J, Pardee R, Toh S, Janning C, Cook A, Sturtevant J, Horgan C, McTigue KM for the PCORnet Bariatric Study Collaborative. Comparative Effectiveness of Bariatric Procedures for Weight Loss and Safety: A PCORnet Cohort Study. Annals of Internal Medicine 2018 169(11):741-750.


Abstracts

Variation in Advance Care Planning Activities Within a Cohort of Patients with Idiopathic Pulmonary Fibrosis
Dimmock, A. E. F., Green, M., Danoff, S. K., Gibson, K. F., Chuang, C. H., Cordova, F.,…Lindell, K. O. (2017). Variation in Advance Care Planning Activities Within a Cohort of Patients with Idiopathic Pulmonary Fibrosis. American Journal of Respiratory and Critical Care Medicine, 195, A1116.

Assessment of Quality of Life in a Cohort of Patients with Idiopathic Pulmonary Fibrosis using PROMIS-29
Dimmock, A. E. F., Lehmann, H., Dimmock, T. H., Danoff, S. K., Chuang, C. H., Cordova, F.,… Bascom, R. (2017). Assessment of Quality of Life in a Cohort of Patients with Idiopathic Pulmonary Fibrosis Using PROMIS-29. American Journal of Respiratory and Critical Care Medicine, 195, A7702.

Patient-reported symptoms of gastroesophageal reflux in a cohort of patients with idiopathic pulmonary fibrosis
Dimmock, A. E. F., Bascom, R., Danoff, S. K., Lehmann, H., Dimmock, T. H., Chuang, C. H.,… Cordova, F. (2017). Patient-Reported Symptoms of Gastroesophageal Reflux in a Cohort of Patients with Idiopathic Pulmonary Fibrosis. American Journal of Respiratory and Critical Care Medicine, 195, A7684.

Hospitalizations and Readmissions for Gastroparesis: Characterization of Patients
Weiner, M., & Parkman, H. P. (2017). Hospitalizations and Readmissions for Gastroparesis: Characterization of Patients. Gastroenterology, 152(5), S518. https://doi.org/10.1016/S0016-5085(17)31908-X

Sex Differences in Prescription of Anticoagulation for Atrial Fibrillation
Gleason, K. T., Samuel, L., Dennison Himmelfarb, C. R., Lehmann, H., McEvoy, J. W., & Nazarian, S. (2018). Sex Differences in Prescription of Anticoagulation for Atrial Fibrillation. Circulation, 136, A15328.

Using a deliberative forum for engaging health system and health plan leaders to prioritize research topics
McTigue, K. M., Hartelius, E. J., Anderson, T. S., Allsup, A. P., Alston, T., Chuang, C. H.,…Mitchell, G. R. (2018). Using a deliberative forum for engaging health system and health plan leaders to prioritize research topics. European Journal for Person Centered Healthcare, 6(2), 1439. http://dx.doi.org/10.5750/ejpch.v6i2.1439

The National Patient-Centered Clinical Research Network (PCORnet) Bariatric Cohort Study Cohort: Rationale, Methods, and Baseline Characteristics
Toh, S., Rasmussen-Torvik, L. J., Harmata, E. E., Pardee, R., Saizan, R., Malanga, E.,…McClay, J. (2017). The National Patient-Centered Clinical Research Network (PCORnet) Bariatric Study Cohort: Rationale, Methods, and Baseline Characteristics. JMIR Publications, 6(12). https://doi.org/10.2196/resprot.8323

Impact of Idiopathic Pulmonary Fibrosis on Executive Functioning: A Cross-Sectional Analysis
Dimmock, A. E. F., Danoff, S., Lindell, K. Cordova F., Gibson, K., Lehmann, H.,… Bascom, R. (2016). Impact of Idiopathic Pulmonary Fibrosis on Executive Functioning: A Cross-Sectional Analysis. QJM: An International Journal of Medicine, 109, S27. https://doi.org/10.1093/qjmed/hcw119.020

Implementing PCORI Methodology Standards for Patient Engagement in the PaTH Idiopathic Pulmonary Fibrosis Cohort
Dimmock, A. E. F., Bascom, R., Carns, J., Uhrig, J., Danoff, S., Lindell, K.,…Scholand, M. (2016). Implementing PCORI Methodology Standards for Patient Engagement in the PaTH Idiopathic Pulmonary Fibrosis Cohort. QJM: An International Journal of Medicine, 109, S58-S59. https://doi.org/10.1093/qjmed/hcw120.008


Talks

Using Narratives to Promote Engagement: The MyPaTH Story Project
Kathleen McTigue. Presented at PCORnet Best Practice Sharing Session; Online. July 11.

Distributed querying across PCORnet: Early lessons.
Jeffery S. Brown, Jessica Sturtevant, Jon Puro, & Kathleen McTigue. Presented at the AMIA Joint Summits on Translational Science; San Francisco, CA. March 30.

Expecting the Unexpected: Kairotic Moments and Rhetorical Intervention in Birth Narratives
Robin Zwier. Presented at the Agora Speaker Series; Pittsburgh, PA. February 23.

PCORnet Best Practice Sharing Session: Stakeholder Contributions to Scientific Manuscripts and A Web-Based Platform for Engaging and Connecting Patients & Caregiver
Kathleen McTigue, Karen J. Coleman, Roni Zeiger, & Kathryn Burn. Presented at PCORnet Best Practice Sharing Session; Online. August 29.

Building Patient Engagement from the Ground Up (peer-reviewed workshop)
Hoover, CG, McTigue K, Richter J, Thomas J. Society for General Internal Medicine Annual Meeting 2016. Hollywood, FL. May 11-14.

Comprehensive Stakeholder Engagement Plan for the Patient Centered Outcomes Research Network (PCORnet) Bariatric Study.
Coleman KJ, Williams N, Anau J, Apovian C, Courcoulas A, Desai N, Doane E, Eckert E, Janning C, Malanga E, McBride CL, McTigue K, Michalsky M, Murali S, Nadglowski J, Saizan R, Sandler B, St. Clair T, Tice J, Vitello J, Zeiger R, Arterburn, D.A Obesity Week 2016. New Orleans, LA. October 31-November 4.

The PCORnet Bariatric Study – Engaging patients and other stakeholders across the US to improve bariatric care. Advancing the Science of Community Engaged Research: Innovative and Effective Methods of Stakeholder Engagement in Translational Research Conference 2016.
Williams N, Coleman KJ, Arterburn D, Anau J, Courcoulas A, Janning C, Nadglowski J, and McTigue KM for the PCORnet Bariatric Study Collaborative.* Association of American Medical Colleges. Washington, DC. August 25-26.

PCORnet Bariatric Study Design: Using health record data from across a nationwide research network to assess bariatric outcomes.
McTigue K, Arterburn D, Williams N, Coleman K and Courcoulas A for the PCORnet Bariatric Study Collaborative.* Obesity Week 2016. New Orleans, LA. October 31-November 4.

*PCORnet Bariatric Study: Patient-Centered and Policy- Relevant Research on Bariatric Outcomes.
Arterburn D, McTigue K, Williams N, Coleman KJ, and Courcoulas A for the PCORnet Bariatric Study Collaborative. Presented at Obesity Week 2016. New Orleans, LA. October 31-November 4.

*PCORnet Bariatric Study Collaborative Members: J. Anau, C. Apovian, L. Bazzano, J. Block, J. Brown, J. Clark, N. Desai, E. Doane, E. Eckert, A. Emiliano, C. Janning, P. Gallasetti, J. Holmes, T. Inge, L. Li, E. Malanga, C.L. McBride, J. McClay, M. Michalsky, S. Murali, J. Nadglowski, R. Nemr, G. Purcell, L. Rasmussen-Torvik, T. Ross, R. Saizan, B. Sandler, D. Schlundt, S.R. Smith, A. Tavakkoli, T. St. Clair, J. Tice, D. Toh, J. Vitello, R. Wellman, and R. Zeiger.

Comparative Effectiveness of Bariatric Procedures Among Adolescents: The PCORnet Bariatric Study.
Inge TH, RY Coley, LA Bazzano, SA Xanthakos, K McTigue, D Arterburn, N Williams, R Wellman, KJ Coleman, AP Courcoulas, NK Desai, J Anau, R Pardee, D Toh, CD Janning, A Cook, J Sturtevant, C Horgan, A Zebrick, MP Michalsky. Obesity Week 2017, National Harbor, MD 11/1 2017.

Comparative Effectiveness of Bariatric Procedures Among 46,510 Adults in the PCORnet Bariatric Study.
Arterburn D, Wellman R, Emiliano A, Smith SR, Odegaard AO, Williams N, Coleman KJ, Courcoulas AP, Coley RY, Anau J, Pardee R, Toh D, Janning CD, Cook A, Sturtevant J, Horgan C, McTigue K. Obesity Week 2017, National Harbor, MD. 11/2 2017.

The MyPaTH Story Booth: Using Patient Stories to Promote People-Centered Research Questions and Stakeholder Engagement.
McTigue K. PCORI Annual Meeting 2017, Washington DC. 10/31/17-11/2/17

Distributed querying across PCORnet: Early lessons (peer-reviewed panel).
Curtis L, Sturtevant J, Divan H, Puro J, McTigue K, AMIA Joint Summits 2017. San Francisco, CA. March 27-30.

Patient perspectives on weight management in primary care: cross-sectional analysis from the PaTH Clinical Data Research Network.
Jain S, Rothenberger SD, Bennett WL, Clark JM, Conroy MB, Herring SJ, Kraschnewski J, Lent MR, Bramante C, Cappella N, Lehman H, McTigue K. Society for General Internal Medicine (SGIM) Annual Meeting. 4/11/2018.

Understanding primary care patients’ self-weighing habits: Retrospective analysis from the PaTH Clinical Data Research network.
Bramante CT, McTigue K, Lehmann H, Clark JM, Kraschnewski J, Lent M, Herring S, Conroy MB, Rothenberger S, Mccullough J, Bennett W. Society for General Internal Medicine (SGIM) Annual Meeting. Denver, CO. 4/11/2018.

National Patient-Centered Clinical Research Network (PCORnet) Distributed Research Network (DRN). Panel Presentation and Discussion.
Sturtevant JL, Louzao D, Marsolo K, McTigue K, Curtis LH. AMIA 2018 Annual Symposium. San Francisco, CA. 11/3/2018.

for the PCORnet Bariatric Study Collaborative. Diabetes outcomes of three bariatric procedures at 1, 3, and 5, years: The PCORnet Bariatric Study.
McTigue KM, R. Wellman, E. Nauman, J. Anau, RY Coley, A Odor, J. Tice, KJ Coleman, A Courcoulas, R Pardee, S Toh, C Janning, N Williams, AJ Cook, J Sturtevant, C Horgan, DE Arterburn. Poster Presentation. Obesity Week 2018. 11/15/18.

for the PCORnet Bariatric Study Collaborative. Long-term Safety Outcomes After Bariatric Surgery in a National Cohort: The PCORnet® Bariatric Study.
Courcoulas A, Coley RY, Clark J, McBride CL, Cirelli E, McTigue K, Arterburn D, Coleman KJ, Wellman R, Anau J, Pardee R, Toh S, Janning C, Cook A, Williams N, Sturtevant J, Horgan C, Tavakkoli A. Poster Presentation. Obesity Week 2018. 11/15/18.


Posters

Pragmatic Data Domain Selection for a National Distributed Research Network: The PCORnet Common Data Model Strategy
Shelley A. Rusincovitch, Abel N. Kho, Jon E. Puro, Daniella Meeker, Pedro Rivera, Aaron A. Sorensen, Jeffrey S. Brown, & Lesley H. Curtis. Presented at 2015 Joint Summit on Translational Science; San Francisco, CA. March 23-27.

Patient perspectives on weight management in primary care: cross-sectional analysis from the PaTH Clinical Data Research Network
Seema Jain, Scott D . Rothenberger, Wendy L. Bennett, Jeanne M. Clark, Molly Conroy, Sharon J. Herring, Jennifer Kraschnewski, Michelle R. Lent, Carolyn Bramante, Nickie Cappella, Harold Lehmann, & Kathleen M. McTigue. Presented at the Society of General Medicine Internal Medicine 2018 annual meeting; Denver, CO. April 11. https://www.dom.pitt.edu/dgim/SGIM_Calendar.html#0411


Other

User's Guide for Integrating Patient-Reported Outcomes in Electronic Health Records.

Patient-Reported Outcomes in Individuals with Atrial Fibrillation Differ by Sex, Age and Education

Understanding primary care patients’ self-weighing habits: Retrospective analysis from the PaTH Clinical Data Research network.

Software to Load Data from REDCap to PCORnet CDM 4.1

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